Live Q&A – Your Long Covid Questions | with Dr Tamsin Lewis & Dr Andrew Greenland – 27th April 2021
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In such a fast moving landscape, in terms of our knowledge around treatment, management and physiology of Long Covid, it helps to share as much of the latest …
Good interviews, thank you. Just wondering, Gez, if you've come across the new website https://covidlonghaulers.com. Dr Patterson, formerly a Stanford researcher, claims they have identified immune signatures for clusters of symptoms, which they can identify with bloodwork and then prescribe a medicine regime to address it.
Hello, I just want to thank you for all your research on LC. I was wondering i you’ve done or plan to do a vax survey like before but with data about the month in which they received the vaccine.
Thank you ever so much this was fantastic
@Dr Tamsin Lewis … and Dr Andrew Greenland .. There are so many videos on Youtube that have Drs like yourself that claim the NHS are supportive of post COVID patients.
I'm a post ICU COVID19 patient (admitted to ICU on 21st April 2020) who hasn't received any help or follow up from the NHS, and to make matters worse I work for the NHS. There is talk of NHS "long covid" clinics, but this seems to be just talk, and all I've received is a print out of a document and an chest xray 2 months after discharge.
I still have multiple issues including pulmonary, cardiac, joint, severe fatigue, chest pain, increased gastric pain.
If GPs and the NHS aren't interested, what do I do ?
One year on it just isn't funny ….
Do we know if bulging visible or full neck veins / arteries are associated as Doctors don’t seem concern my my Carotid artery is visible at rest of late
You might want to take a look at this webinar that Institute for Functional medicine has about Long Covid-19. Some things similar like you think but also some other thoughts https://www.ifm.org/news-insights/covid-19-vaccines-in-phase-3-trials/
I wonder people who got long covid and get vaccined but it make it worse, do you have mild symtomps while getting covid? Just curious.
The things that have helped me alot are quercetin the b vitamins low histamine diet electrolytes and magnesium salt baths. That also helps with sulfur which we need so we don't become sensitive to other things passing through the gut. Herbs. Fresh not dried. Sticking to plant milks mainly oat and coconut no sugar versions. No aged cheeses but soft cheese full fat less additives for calcium gluten free wraps not bread avoiding yeast and inflammation. Rice noodles and brown rice. Sweet potatoes only in small amounts. Low dose tumeric with curcumin and beef kidney 6 times a day 15 minutes before meals for b12 and dao enzymes that help block histamine. No caffeine. Only camomile tea or peppermint tea with added zinc and magnesium.
It takes time and endurance to beat long covid. It took me 7 months to fully recover. Sometimes I was afraid I never would recover fully. It's a bumpy road!
I was long haul. After first jab had massive reaction for 48 hours then got better. Really better because I believe that the jab was required to kill the covid that was hiding still, although discrete , in my body. Even got smell back after 11 weeks. Just had second astra jab at 12 weeks, no reaction whatsoever, felt fine. Making me believe that the first jab had finally got rid of the covid doing what my body failed completely to do.
Thankyou so much for this . I like thousands of others have been totally floored by covid . I caught covid thirteen weeks ago and although I wasn't hospitalised I had covid pneumonia and had a pretty severe case of covid .
Week six and the debilitating neurological symptoms started and are still ongoing thirteen weeks in . My brain throbs all the time ,I have pins and needles and numbness and fatigue all the time . The brain fog is so debilitating .
I'm taking niacin , Ala , Q10, magnesium, carnatine , vitamin D , c and Udos omega oil .
Everything you've said makes complete sense . Thankyou for ending the conversation on a positive . I am trying so hard to stay positive but this feels like such an endurance test .
Stay strong everyone
Most fish oil is rancid and harmful.
Search up Russian flu 1892 same thing as Covid 19 it left people with post viral fatigue and neuro issues for 3 years+ some never recovered it sent the immune system out of whack. These videos will not help or make any difference to your symptoms the only real medicine is time
Thank you so much for spreading knowledge in our difficult situation. It makes life better.
Hi Gez, I just came across your channel and the videos are so informative and very much appreciated. I am 3 weeks in and my arms and legs feel like lead 24/7 with body aches intermittently. Just wondering if you or others have experienced this, and if so, any advice?
For eye inflammation, ketotifen eye drops might help. They are available OTC in the US. They do sting a bit at first.
For exercise intolerance, has anyone tried beta alanine or carnosine? I recently purchased a topical carnosine product, LactiGo. I have patch tested and it did not cause me a rash, but I have not yet given it a real try. I have histamine intolerance / MCAS symptoms, not post-covid, probably some other post-infection syndrome. I don't have too much trouble exercising; my daughter also suffers from something similar and has extreme fatigue and exercise intolerance – she has also just patch tested it. I have tried beta alanine in the past and had the pins and needles side effect – quite unpleasant.
raise your hand if you have widespread twitches from this stupid virus .o/
Thank you for your insights about long Covid … it is the next big challenge for millions around the world
Three things helped, low histamine diet, the vaccine, and my doctor saying "it must be Epstein Bar retuning!😊". This cheered me up and I felt good physically upon hearing that. It turned out that it wasn't Epstein Barr. But I still felt better.
Now waiting to hear if AFTER the vaccine you can get a mild case, and get long Covid again from that mild case. That is the big question, as my work brings me into close contact with unvaccinated children.
My chest pain/soreness turned out to be severe Right heart dilation (new, per MRI), but resolved on its own. Function was only "mild dysfunction" 30 day EKG normal. Lasted 6 months. Im 9 months out. No prescriptions. Paced incremental daily walks.
Thank you sooo much 🙏
After the 2nd Pfizer vaccine dose, some of my Long Covid symphtoms returned worsened: Fatigue, brain fog, tachycardia. Is it a reaction of my immune system? Should I treat them as LC symphtoms? 2 neurologist already said there's nothing to help them. What can I do to help them?
Autoimmune illness and vacines don,t mix.
Hy Gez, just sent you a message via Facebook Messenger. I sent you a draft of the Long Covid Treatment Guide. Let me know your thoughts. Looking forward
The first international ivermectin Covid conference
https://youtu.be/GGIWe5RegVU
Thank you both very much for this. Thanks too to Gez.
I have just had the results of my head and spine MRI. I had fully expected the scan to be clear as my neurologist in Exeter had referred me for potential blood clots and I hadn't heard back for ages. The results were a goitre, lesions suggesting two mini strokes and narrowing of spinal canal.
I have been referred to a thyroid surgeon.
Is my baby asprin (75mg Tesco gut friendly) sufficient to protect from any further mini strokes?
Is there evidence that the thyroid recovers if caused by LC?
Thank you!
Do you have any advice for people losing their hair? I was in the hospital for a month starting Feb 11 2021. I had trouble keeping my oxygen level up, and still on oxygen.
Thanks for the video, it was very informative. I have started the Gupta Program which has started helping, but I don’t know if you want to speak to ME groups before recommending the Lightening Process? They have a lot more experience of it, I haven’t seen anything positive written about it.
Covid, poorly, then better but no sense of smell for a year. Had the jab, sense of smell coming back 10 weeks after. Getting second jab this week.
You cannot tell me that the covid does not hide somewhere in us long haulers. The jab worked for me. Get the jab and get better😀
Anyone had a covid exercise test? Any benefit to it?
My problem is I can't go to sleep at night and my dizziness is very difficult to handle..Mri show thickening of sinus what can I do
Currently trying Ivermectin. Doctor says it won't work so won't prescribe it, so had to resort to my wife's horse paste. Going off of the FLCCC recommendation I am took 200mcg/kg on day one and day three, which happens to be the same level as horses. Today is my second dose, and I will say I am doing better. My perpetual headache has gone away as well as brain fog. I can actually concentrate. Fatigue is still there and at this point too scared to try any level of physical excursion. I will probably do a third dose in a couple of days and then stop to see if the effect stays. if this does not work, my next try is fluvoxamine. My doctor says it has promise but says I should wait till studies are complete. What for? If it helps one person it is worth a try as doing nothing gives me no chance.
Dr Tam mentions a few times that she has done other videos on a few topics. Do links to those exist?
Great conversation. I have been dealing with all the symptoms you have described for the past 14 months. Five days ago I had my firs Pfizer shot. I was scared and expected the worst. To my surprise I started to feel better within the first 4 hours after the shot. Ended up having some mild symptoms for a few days, but over all I feel like it turned off the virus that has been actively attacking me for the past year. My whole family noticed how much better I am doing. I think viral persistence theory is true for a lot of people at least it seems to be for me.
Low histamine diet is what has helped me most, then dao to try and add more foods back
What about the bladder have IC and have issues still frequency some mid back pain. Had ct scan and everything is negative. Still have issues
Thank you Dr.Lewis and Dr. Greenland…..still fighting after 14/15 months. You give me hope. …and I need hope. Love and respect to you both, from North Carolina, USA. WELL DONE. I had first vaccine…9 days til 2nd dose…can't wait!!!😉
The constant pressure of stress on our bodies and minds caused by 1.5 year of health uncertanty and BS by the government's has a big influence on how we are doing. Many of us never had this amount of stress for such a long time in our lives. It's not surprising we feel bad as long haulers… Many things are spot on in this talk! We would feel so much better with normal social contacts and the press shut up for 300 years. Eat/live as healthy as you can, hug your friends, and talk as little as possible about covid….. Free your brain if you can!
I had my first dose of pfizer and can't say I'm worse, only some arm pain for 3 days and felt pretty good, I could actually finally sleep kinda normal. Yesterday I stayed a bit too late and I was unable to sleep until 6 am and at 9 I had to work so now I'm a bit fcked but still nowhere near I was 2 months ago. After 4 months I think time is the only thing that helped me the most, vitamins probably did very little. I can say in my good days I'm 85%-90% and in bad days like today I'm at 70% which is a big improvement compared to 4 months ago when 70% was a good day. Still not perfect but going on the right direction. Sleep is still my biggest issues but now I actually get good sleep in some days which I never had like 2-3 months ago.
Pretty reasonable answers from the information I have been picking up, however I'm surprised you have been so accepting of the Lightening Process which NICE has recently outright rejected as a treatment for ME in the draft revision of it's guidelines. Furthermore, like the NICE rejected graded exercise therapy, large scale patient surveys have found harms from this (expensive) approach. My personal experience from post viral ME is that no approach helps if you don't pace adequately and while you keep pushing through and re-triggering your symptoms you are harming your capacity to improve.
Also, there's no point talking about exercise if you are crashing from trying to carry out the basic tasks of daily living like washing, cooking and getting to the loo. There is some really relevant information from Workwell and Physios for ME, with lots of tips on how to pace successfully including using a heart rate monitor. Resting (whilst maintaining what strength and mobility you can ) is really critical, especially in early stages of a post viral illness. Half an hour rest during the day is no where near enough for those who are more severely ill. If you mislead them with these kinds of comments about exercise, you risk giving advice that could make patients worse.
I agree, meditative and breathing practices are free and helpful and can be combined to improve quality of rest but trying to run before you can walk consistently without a relapse, or walk before you can do the basics of self care is just counterproductive.
My tinnitus flared up to a loud volume, three months after my first Covid symptoms, before that 3 month point it was at it's baseline volume. I'm not sure but it was even Covid related but hard to deny it had at least a minor role to do with the drastic change with the tinnitus.
25:15 In the evenings – use the Night Light function on devices, and turn up the strength. It can completely remove all the blue light.
During my year of tests for Long Covid, nodules have shown up in my lungs and my thyroid is said to be enlarged. It is suggested that I have Cancer. You almost said that Covid can inflame lungs and the thyroid. Have you heard a relationship between Long Covid and cancer diagnosis ?
Medication brought me back 90% and I got the vaccine and I think that made it even better, but not sure. I'm off meds now and able to work out again. I'm not an athlete in fact quite the opposite, but I'm able to do the same workout if not much harder before covid. Hopefully there is no relapse from here I just feel back to normal now hard to explain, but long haulers know what I mean.
Niacin helped me a little bit. B12 also helped. Zinc helped. Tumeric (curcuma) helped. Magnesium helped. They all do just a little, but many little things will help quite a lot overall! After 4 months, I can finally see that I have more good days, while still having to be reasonnable.
I'm 13+ months in. fatigue, post exertional malaise, SOB/breathing disfunction being the main symptoms. Also had myocarditis as a result of Covid19. Was starting to feel better until first Astrazeneca vaccine 3 weeks ago. Feel like I'm back to square one now. Anyone else experience this?